New Families
Welcome to the Down Syndrome Network of Montgomery County. We know that the birth or upcoming birth of your baby with Down syndrome brings many mixed emotions – love, fear, joy, sadness and many questions. Whatever you might be feeling or thinking, these first days and weeks can be overwhelming, but we would like you to know that we have been in your shoes and are here to help in whatever way we can.
If you are like many of us, you have not had experience with Down syndrome and are looking for information. We don’t have all the answers, but our packet for new parents provides information about Down syndrome and resources in Montgomery County.
Meeting and talking with other parents in our group can provide you with valuable information, comfort, and perspective. We have also included many resources here on our website to provide you with current information on Down syndrome. Improved medical care, early intervention and advocacy are enabling children with Down syndrome to lead bright and fulfilling lives.
We hope that you will reach out to us. We would like to help you navigate these first days and weeks so you can come to experience the overwhelming joy and love that our children bring to our lives. To request a home or hospital visit from our New Family Coordinator, please email our New Family Outreach Committee Chair. Or, contact us by phone at 301-979-1112.
Expectant Parents
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A Web-based resource on receiving a diagnosis of Down syndrome prenatally and at birth.
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The NDSS is a national organization that is committed to improving the quality of life of all people with Down Syndrome.
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Provides information, resources, support, and education, as well as teaching advocacy and networking opportunities.
New Parents
National Resources
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A Web-based resource on receiving a diagnosis of Down syndrome prenatally and at birth.
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An organization of fathers of children who happen to have Down syndrome (Nearest local chapter is Northern Virginia)
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Promotes a better understanding of breastfeeding as an important element in the healthy development of the baby and mother.
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Includes growth charts for typical children and children with Down syndrome.
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The NDSC is a non-profit organization that advocates for individuals with Down Syndrome to provide them with better opportunities and equality.
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The NDSS is a national organization that is committed to improving the quality of life of all people with Down Syndrome.
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Publication about possible benefits for children with disabilities
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The clinic strives to optimize the health and quality of life for children and adults with Down syndrome.
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Benefits of the Employed Individuals with Disabilities (EID) Program
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The Early Childhood Gateway offers great resources for providers and parents with young children with disabilities from birth to five.
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Supports children, youth, adults and families affected by intellectual and developmental disabilities by providing child care, work skills training, employment, community living services, resources and advocacy.
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For families moving to the area, contact Child Find to conduct an assessment to have your child placed in services
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The Infants and Toddles program provides early intervention services to children in Montgomery County with developmental delays from the time they are born to up to 3 years of age.
Recommended Reading For New and Expectant Parents and Siblings
Siblings
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A national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns. Contains links to the local Maryland groups.
Recommended Reading 4 – 8 years
Recommended Reading 9 and Up