DOWN SYNDROME ORGANIZATIONS
INTERNATIONAL
Down Syndrome International includes people with Down syndrome and other disabilities, friends and family members, professionals, and organizations from around the world.
European Down Syndrome Association
European Down Syndrome Association brings organizations together from across Europe by sharing information and promoting collaboration to improve life for poeple with Down syndrome and their families.
GiGi's Playhouse changes lives and provides hope through the consistent delivery of free educational, therapeutic, and career development programs for individuals with Down syndrome, their families, and the community, using a replicable playhouse model. With over 61 brick-and-mortar locations across the United States and Mexico and 200 inquiries to start new locations all over the world, GiGi’s Playhouse is the only network of Down Syndrome Achievement Centers. GiGi's Playhouse Annapolis serves the greater DC metro area.
The International Mosaic Down Syndrome Association (IMDSA)
International Mosaic Down Syndrome Association (IMDSA) is designed to provide support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome. IMDSA provides a variety to helpful services to meet the needs of any individual interested in mosaic Down syndrome.
NATIONAL
Black Down Syndrome Association (BDSA)
BDSA strives to create a community of support and understanding and to provide a platform for Black families to share their stories, experiences, and needs. BDSA is committed to advocating for the rights of Black persons with Down syndrome and to ensure that they are given the same opportunities and respect as everyone else.
Dads Appreciating Down Syndrome (D.A.D.S.)
To assist and support, through fellowship and action, the fathers and families of individuals with Down syndrome.
Down Syndrome Affiliates in Action (DSAIA)
DSAIA strives to support and advance the growth and capacity of local and regional Down syndrome associations. DSAIA provides the connections, the inspiration, training, and resources so that its members can meet the needs of individuals with Down syndrome in their communities.
Down Syndrome Diagnosis Network
Down Syndrome Diagnosis Network works to connect, support, and provide accurate information to parents and medical professionals who serve individuals with Down syndrome.
Global Down Syndrome Foundation
Global Down Syndrome Foundation is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy. GLOBAL workS to educate governments, educational organizations and society in order to affect legislative and social changes so that every person with Down syndrome has an equitable chance at a satisfying life.
The lettercase website provides expectant parents and medical professionals with resources and training to get the support they need following a prenatal or postnatal diagnosis.
LuMind IDSC is the bridge between the Down syndrome community and Down syndrome research. LuMind accelerates Down syndrome research to increase availability of therapeutic, diagnostic, and medical care options and empowers families through education, connections, and support.
MDSC First Call National Training Center
The First Call National Training Center offers support and training for local and state Down syndrome organizations to replicate and implement MDSC's Parents First Call program in their local area. MDSC provides a comprehensive personalized training to organization leaders and parent volunteers throughout the United States.
National Down Syndrome Adoption Network (NDSAN)
NDSAN is a nonprofit program that offers support and information to parents whose child has received a diagnosis of Down syndrome and may be considering an adoption plan. They provide a listening ear and information and keep a registry of families from all over the United States who are interested in adopting a child with Down syndrome within the US. NDSAN is a nonprofit program and charges no fees for its services.
National Down Syndrome Congress (NDSC)
The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome. NDSC exists with the purpose to promote the interests of people with Down syndrome, to educate through awareness, to advocate and ensure their rights are recognized and protected, to empower, and to inspire and reshape the way people understand and experience Down syndrome.
National Down Syndrome Society (NDSS)
NDSS empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions. The organization’s work is achieved through three key areas of programming: Resources & Support, Advocacy & Policy, and Community Engagement.
MARYLAND
Down Syndrome Association of Maryland
Down Syndrome Association of Maryland provides information and support to individuals with Down syndrome, their families and the broader Down syndrome community. The orgaization provides information and support to profressionals who work with individuals with Down syndrome.
Down Syndrome Association of Southern Maryland
Down Syndrome Association of Southern Maryland provides education resources, active social support, and increases awareness, understanding of Down syndrome. The organization also provides need-based financial assistance and medical equipment to individuals with Down syndrome.
F.R.I.E.N.D.S. (Family Resource, Information & Education Network for Down Syndrome) is a support, advocacy, and resource group of and for parents in Frederick County, Maryland.
Parents of Children with Down Syndrome (PODS) of Prince George’s County
PODS provides support and resources for individuals with Down syndrome to broaden awareness and foster positive attitudes. They work to inform the community about the existence and needs of people with Down syndrome with the aim of building inclusive environments for all.
